Founders, Trustees and Ambassadors
Lou James (MNZM) - Founder and Trustee
Lou James is the pioneering force behind the cancer rehabilitation movement in New Zealand and Australia. Thanks to her incredible work, hundreds of cancer survivors have got their lives back to the way they once were – and many more in the future can look forward to similarly reclaiming their former selves.
Lou, an experienced physiotherapist, is responsible for the introduction of the PINC Program: an individualised rehabilitation and exercise program, previously known as Pink Pilates, which focuses on the physical and mental wellbeing of female cancer survivors. The programme has supported more than 4000 women since its inception. Its male equivalent – The STEEL Program– has been subsequently introduced in 2011.
The mother-of-two was prompted to establish the program after seeing first hand in her own physiotherapy practice, the physical and emotional toll that cancer had on the lives of the women affected and the people close to them.
Professor Rod MacLeod (MNZM)- Founder and Director PINC & STEEL International
Professor Rod MacLeod PhD MMedEd FRCGP FAchPM is a Senior Staff Specialsit in Pallliative Care and Conjoint Professor of the University of Sydney, based at Hammond Care's Greenwich Hospital.
In 2011, Prof Rod MacLeod joined the Board of PINC & STEEL International and helped drive the development of the male-specific STEEL Cancer Rehabilitation Program, launched in November 2011, as well as teh extension of the PINC Program to cater for women recovering from all cancers. Rod had been a long time advocate of the PINC Program and he as a long record of international prominence in the field of palliative care achieved throught clinical practice, research, education and service.
He has been involved in cancer research for the past 23 years and has conducted research into the benefits of exercise for males recovering from prostate cancer.
Anne-Marie Arts: Chair
Anne-Marie became the Chair of The Pinc and Steel Charitable Trust in 2016. She is the Managing Director of an Agribusiness Consultancy Company with decades of experience in industry management and leadership roles. She is a member of the Institute of Directors.
Her focus is upon the good governance of the trust. She is working behind the scenes to ensure that the necessary systems and processes are in place and are working effectively.
Her objective in working with the trust is to assist the founders achieve the goals they set for themselves, namely to help people minimize the side effects of the treatments and encourage them to have the best quality of life they can.
As a breast cancer survivor herself, Anne-Marie believes that physiotherapy and rehabilitation are a crucial part of regaining strength and confidence after surgery and treatments.
Many people are not aware of the need to be physically active after treatment or may need some support to get back on their feet.
Vicky Lewis - Executive Trustee
LLB (Canterbury); Graduate Diploma in Business Studies (Auckland)
Victoria joined the Board in 2010 and has been responsible for the day to day management of the Trust for the past two years. Prior to having a family Victoria worked as a Corporate lawyer in the property and hotel management sector. Victoria's involvement with the Trust began after getting to know Lou through a shared love of sports, the outdoors and pilates. Victoria is also on the Board of Trustees of Westmere School. For Victoria working in the not-for-profit sector provides a meaningful way of giving back to the community.
Rachel Foote - Trustee
I know very well the positive effects that the PINC Program can have on people after cancer diagnosis, through first knowing others who went through the Program and later as a participant myself. I decided to work with the Trust to build awareness of the programme and its many benefits in helping people cope with their own cancer experiences. I’ve been overwhelmed by the countless inspiring stories and people I have met in the short time that I have been involved.
My name is Ailie Jaine and I am happy. That is the main thing in life, right?
Last year, aged 23, I was told I had a large chondro sarcoma growing off my pelvis. Basically, that translates to a big cancerous tumour just above my hip. I'd need a surgery to remove both tumour and surrounding bone/muscle, and "may eventually be able to walk without a limp."
For a person who's life had always been filled with outdoor adventures it felt like I'd been kicked in the face. Really hard. No really, really hard.
I found out about the Pinc Programme through my sister before I even had the operation so was chomping at the bit to start it as soon as possible. Everything about the program was great. For a start, having someone slightly removed from my life to talk to, about goals, worries, things that were going great and then things that were not, was a lifesaver. Very importantly, the physio was highly trained and the progress I made was fast, fun and satisfying. She was flexible in her plans and always worked my lifestyle or holidays into the exercises.
It was like learning to do things for the first time as a child. Walking on crutches to the woolshed at the home farm felt equal to reaching the summit of Everest. At the end of my first day back on snow skis, my jaw hurt from smiling more than my legs from skiing. It sounds cheesy, I realise, but everything had a new glow.
Of course there were hard times, but I am fortunate to have a loving family and supportive friends.
Now that I'm back working as a nurse, and biking, skiing, tramping and enjoying my life I can appreciate how this hurdle has helped me. Always, you can look at a situation and find a positive.
For "the crack is where the light comes in."
Nick White was diagnosed with head & neck cancer in 2009, and treated over the course of a year with with surgery, chemotherapy and radiation treatment. Nick completed a STEEL physio programme in 2010 and having fully recovered from his treatment, now enjoys a wide range of outdoor activities.
Nick live and works in Wellington. He is a trained and active volunteer for the NZ Cancer Society’s Cancer Connect network, founder of mycancerexperience.co.nz, a nonprofit support site for New Zealanders affected by cancer. Nick often speaks to health and private sector organisations around New Zealand about his health experiences.
Most of all, Nick loves mountain running. He has completed off-road mountain races including The Goat Tongariro, The Motatapu Marathon and Offroad Triathlon (for Team STEEL!), The Routebourne classic, a summit of Mt Taranaki and the Mt Difficulty Wild Ascent in Cromwell, regarded as New Zealand’s steepest and most treacherous mountain race. In July 2014 he completed a mountain race to the summit of Mt Fuji in Japan, to raise awareness and funds for cancer research.